Preschool aged children with Tuberous Sclerosis
There are some criteria children with TSC must meet in order to join the study:
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Aged between 3 years 0 months and 5 years 11 months
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Have a confirmed diagnosis of TSC
The main assessments for families include parent-report questionnaires and interviews about their child's development, a parent-report sleep diary, home-based assessments such as play-based tasks and observing children's behaviour in their natural environment. In total, families should be enrolled for no longer than 2 weeks.
The EDiTS study preschool phase involves a range of assessments that can be carried out in the family home or remotely (on the phone or a video conferencing platform with a researcher), some of which overlap with the infant phase.
Recruitment is now open!
To better understand how TSC affects development beyond infancy, we will be following up the EDiTS study with a preschool population of children with TSC. To achieve this, we will be recruiting preschool children aged between 3 years and 5 years 11 months with TSC to join our study and undergo a range of assessments.
Typically developing preschool aged children
In order to understand how TSC affects development in young children, we need a comparison group of children who do not have TSC. We will be inviting typically developing children aged between 3 years and 5 years 11 months to also undergo a series of assessments so that we can compare their development to children with TSC.
There are some criteria that typically developing children must meet in order to join the study:
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Aged between 3 years 0 months and 5 years 11 months
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Have no first-degree relatives diagnosed with epilepsy, ASD and/or ADHD and a normal gestational age
The main assessments for families include parent-report questionnaires and interviews about their child's development, home-based assessments such as play-based tasks and observing children's behaviour in their natural environment.
The EDiTS study preschool phase involves a range of assessments that can be carried out in the family home or remotely (on the phone or a video conferencing platform). Some of these assessments are the same as in the infant phase.