As Charlotte prepares to welcome her own baby scientist in June 2019, there may be slower responses from the EDiTS Study office. Do continue to send any queries to our email address or call/text our study mobile, and we will get back to you as soon as possible.
Wishing all of our baby scientists a happy 2019! We have some extra funding to continue the study this year, so look forward to seeing more of you all as many of the EDiTS Study participants reach their second birthday!
June 18, 2018
New babies joining the EDiTS Study
We have now recruited 35 typically developing babies and 24 babies with TSC - wow! From Edinburgh to Brighton, and Belfast to Essex - thank you for all of your help so far; we are so chuffed with our little team of baby scientists!
Some of our families will be all too familiar with the pop-up tent we set up in their homes (we promise we're not moving in!) This is used to control light levels and distractions during our eye-tracking game. Eye-tracking tracks precisely what a baby is looking it, before they are even able to speak or press buttons! After over 100 visits however, our tent has finally seen the last of its days and has lost the 'pop' to its 'pop-up'. On the bright side, we have a brand-spanking new tent - sans the tea stains and rice cake crumbs! Make sure to look out for it on our next visit...
January 12, 2018
This week we spent some time in Wales visiting some of the families involved. We work closely with clinicians across the UK to recruit our participants, including Prof Julian Sampson and his team at Cardiff University. You can see some of their work on TSC in the video below.
We are now in the final year of our project, although we are now applying for funding to continue and extend the study - fingers crossed! We have now recruited 18 babies with TSC and 30 typically developing babies, so we are well on track to complete our study on time. Thank you for all your help so far!
December 25, 2017
Merry Christmas to all our amazing EDiTS families! All our babies have definitely made it on Santa's nice list this year. Looking forward to seeing you all in the new year!
May 07, 2017
TSC Awareness Month
May is TSC Awareness Month!
March 01, 2017
Full steam ahead!
It's been a while since we updated our News section, which is a sign of how busy the EDiTS office is now! We have enrolled 23 typically developing infants and 6 infants with TSC, travelling from Belfast to Glasgow to Cardiff to Newcastle. After some issues with our eye tracker that some of our families may remember (!), we are now obtaining great quality data with our babies as young as 3 months old. Within the next few months, Charlotte will be analysing some of this data and we will keep you posted on what we find!
We've now enrolled 7 typically developing babies and 1 baby with TSC into the EDiTS Study - thank you to our great participants!
We've been having a great time travelling the country visiting our baby scientists over the last couple of months. Click below to see Charlotte with an 11-month-old and our very cool sunglasses for Mum to wear while we track baby's eyes- thumbs up! Our eye-tracking equipment shows us precisely where babies are looking and what catches their attention while watching fun videos.
So the last couple of months have been really busy with piloting and checking that everything is working properly.
We have been doing eye-tracking tasks in the home along with various fun and games with ourselves and the baby. Everything seems to be running smoothly, we are even managing to do eye-tracking on 3 month olds which is really exciting. So far we have travelled across the coutnry from Bracknell to Liverpool and Nottingham. It has been lots of fun and we are grateful to all our amazing pilots!
March 24, 2016
Our first pilot assessments are underway!
Our collaborators at the Babylab have already conducted home-based visits with 10- and 14-month olds, so we know the games and videos we use are fun for the babies at these ages. Over April 2016 we will be visiting 3- to -8 month old babies across the UK to make sure our equipment and games are all working correctly with the younger babies! Today, Charlotte & Abby conducted our first pilot (practice) assessment with 3-month-old, Jude, at his home in Essex. Everything went well and Jude did brilliantly!
If you know of any typically developing 3- to 8-month olds who are happy to take part in these one-off visits (or for us to come back multiple times), please put us in touch.
We have published a general review article in the journal Advances in Autism, highlighting the importance of the early years in TSC. This article is a good overview of the reasons we are starting the EDiTS Study.