Preschool Phase Aims
The aim of this study is to follow the development of babies and young children with Tuberous Sclerosis to better understand the condition and how it affects development. As the infant phase comes to a close, we are now continuing the study to assess development and behaviour in preschool children aged 3-5 years old with TSC and typically developing children, to understand changes over early childhood and how these predict outcomes (e.g. social communication, attention and cognitive ability).
Preschool Phase Assessments
The preschool phase involves a range of assessments that can be carried out in the family home, including a fun tablet-based game called 'Pip and the Brain Explorers' for your child to play, and a remote activity monitor measuring movement and sleep. See below to learn more about these new measures. You can find more detail about what the assessments will be like by looking at our General Information Sheet here.
Recruitment for the preschool follow-up phase is now open! Head to our Taking Part page to check if your child is eligible and find out more about what participation in the study involves. You can also watch the video below for more information.
Pip and the Brain Explorers!
One of the fun tasks we will ask children to complete is the Pip and the Brain Explorers app, developed by our collaborators at Birkbeck. This app includes a series of fun and interactive games designed to measure cognitive development, including control, attention, focus and social processing.
E-Snore Mobile App
We are working with our collaborators at the University of Birmingham to collect information about children's sleep and movement, as this is an important part of development. To do this we will ask parents to complete a 'sleep diary' which includes a range of questions about their child's movement each day and night.