Preschool aged children with
Tuberous Sclerosis

To better understand how TSC affects development beyond infancy, we will be following
up the EDiTS study with a preschool population of children with TSC. To achieve this,
we will be recruiting preschool children aged between 3 years and 5 years 11 months with
TSC to join our study and undergo a range of assessments. 

There are some criteria children with TSC must meet in order to join the study:

  • Aged between 3 years 0 months and 5 years 11 months

  • Have a confirmed diagnosis of TSC

The main assessments for families include parent-report questionnaires and interviews about their child's development, a parent-report sleep diary, home-based assessments such as play-based tasks and observing children's behaviour in their natural environment. In total, families should be enrolled for no longer than 2 weeks.

 

The EDiTS study preschool phase involves a range of assessments that can be carried out in the family home or remotely (on the phone or a video conferencing platform with a researcher), some of which overlap with the infant phase.

Recruitment opening soon!

Typically developing preschool aged children 

In order to understand how TSC affects development in young children, we need a comparison group of children who do not have TSC. We will be inviting typically developing children aged between 3 years and 5 years 11 months to also undergo a series of assessments so that we can compare their development to children with TSC.

There are some criteria that typically developing children must meet in order to join the study:

  • Aged between 3 years 0 months and 5 years 11 months

  • Have no first-degree relatives diagnosed with epilepsy, ASD and/or ADHD and a normal gestational age

 

The main assessments for families include parent-report questionnaires and interviews about their child's development, home-based assessments such as play-based tasks and observing children's behaviour in their natural environment.

The EDiTS study preschool phase involves a range of assessments that can be carried out in the family home or remotely (on the phone or a video conferencing platform). Some of these assessments are the same as in the infant phase.