The aim of this study is to follow the development of babies and young children with Tuberous Sclerosis to better understand the condition and how it affects development. As the infant phase comes to a close, we are now continuing the study to assess development and behaviour in preschool children aged 3-5 years old with TSC and typically developing children, to understand changes over early childhood and how these predict outcomes (e.g. social communication, attention and cognitive ability).
The EDiTS preschool study involves a range of assessments that can be carried out in the family home, including a fun tablet-based game called 'Pip and the Brain Explorers' for your child to play, and a remote activity monitor measuring movement and sleep. See below to learn more about these new measures. You can find out what the assessments will be like in more detail on our Information Sheet page too.
Recruitment for the preschool follow-up will be opening in Spring/Summer 2021! Check back on the Recruitment page to see when and how you and your child can be involved.
Pip and the Brain Explorers!
E-Snore Mobile App
One of the fun tasks we will ask children to complete is the Pip and the Brain Explorers app, developed by our collaborators at Birkbeck. This app includes a series of fun and interactive games designed to measure cognitive development, including control, attention, focus and social processing. Re
We are working with our collaborators at the University of Birmingham to collect information about children's sleep and movement, as this is an important part of development. To do this we will ask parents to complete a 'sleep diary' which includes a range of questions about their child's movement each day and night.